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Hyper POTS?
Thanks to some help from a friend, who ran my readings through a statistical routine, he thought it looks like I am more likely hyper pots than combo. I will have to have my norepi levels checked to...
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Tilt This
I firmly believe the tilt test, or rather the “Poor Man's Tilt Test”, should be a standard part of all regular physical examinations, starting with school age children. This is something you can also...
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There’s a big ‘L’ on my forehead!
First go read this: Living with Bob (Dysautonomia): “Should I go to the ER?”, and other dumb questions I ask myself. Once again, my POTS twin in Oz has nailed it. What she wrote, linked above, is a...
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Pulse Pressure: the ignored vital statistic
I admit from the beginning of this post that pulse pressure monitoring is one of my pet topics, so there is a bit of personal bias here. Having said that, I firmly believe every Dysautonomia patient...
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Crazy POTSy crap…
Yesterday was a horrible day for me. I had another pulse pressure drop with tachycardia, and this time had awful nausea along with tingling and numbness in my face, tongue and throat. I actually...
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Pulse Pressure in POTS/Dysautonomia Research Group
As you may already know, if you are a regular here, I have been writing a series of posts on pulse pressure drops and spikes after discovering that there is virtually NOTHING on the net about this...
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Crazy POTSy crap, episode two…
Nuff said: [108/70 mmHg 91 bpm, 83 MAP, 38 PP, laying down at 12:55pm] [87/74 mmHg 146 bpm, 78 MAP, 13 PP, standing one min at 02:02pm] [135/67 mmHg 74 bpm, 90 MAP, 68 PP laying down one min at...
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Embracing the unexpected
I am about to do something I could not have even imagined doing earlier this morning, when I awoke for pain meds, a small snack, and the intent to return to bed…and was greeted with a comment awaiting...
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My Blood Pressure Software
My Blood Pressure Software — Create your own blood pressure chart and printable report –Free trial download. I am a Mac girl, but for you PC/Windows peeps out there, this looks like an interesting bet,...
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To Err is Expected
iBP Graph It is definitely a challenge getting a reading when my pulse pressure (PP) drops really low. No method or cuff will get a reading every time when it is really low. I was asked about how to...
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My Oasis
This retractable pool enclosure is like a greenhouse that you can open all the way up on a hot day, or keep closed and swim when there is snow on the ground! Swimming is my primary therapy, so being...
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Blood Pressure Chart – Normal Blood Pressure Range
Blood Pressure Chart – Normal Blood Pressure Range. Interesting information on blood pressure; good basic background reading with charts for the newly diagnosed POTSie/Dusautonomia patient. Posted with...
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Postural Tachycardia Syndrome (POTS) article
Postural Tachycardia Syndrome (POTS) article by Dr. Raj, includes succinct overview. Posted with Blogsy via my iPad Mini Filed under: Autonomic Function, Dysautonomia Tagged: blood pooling, blood...
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A typical POTSy moment…
Just a peek at one POTSy moment… Posted with Blogsy via my iPad Mini Filed under: Autonomic Function, Dysautonomia, NMH/NCS/VVS, POTS, Syncope Tagged: blood pooling, blood pressure, bp, charts,...
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POTS 101
POTS 101: a fellow POTSie blogger's very clear explanation of POTS. Great foundation! via POTS 101. Posted with Blogsy via my iPad Mini Filed under: Autonomic Function, Dysautonomia, POTS, Syncope...
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POTS and Quality of Life
POTS (Postural Orthostatic Tachycardia Syndrome, a form of Dysautonomia) is a particularly vile condition, especially when it is very severe. Mine is about as severe as it gets. I have ups and downs,...
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Methylenetetrahydrofolate Reductase (MTHFR)
This is a very interesting, intensive sight, well worth a thorough study, in my opinion. A Facebook friend reminded me about it tonight, so I am taking the opportunity to pass it along. It may take...
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Cause of postural tachycardia syndrome found
Partial autonomic dysfunction that is more pronounced in the legs than in the arms can cause the postural tachycardia syndrome via Cause of postural tachycardia syndrome found | theheart.org These...
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United We Tilt!
I have a favor to ask you all. PLEASE either do this simple test at home or ask your doc to do it when you go for your next physical exam…I strongly advocate the ‘Poor Man’s Tilt Test’ be a part of...
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My Oasis
This retractable pool enclosure is like a greenhouse that you can open all the way up on a hot day, or keep closed and swim when there is snow on the ground! Swimming is my primary therapy, so being...
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Primer on the Autonomic Nervous System: my take
Got POTS? NCS/NMH? Read this medical text…study it. It’s heavy reading for most people, I expect, but I think it’s worth diving in if the contents affect your life to the extent that Dysautonomia of...
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POTS & pulse pressure diagram
(Credit: Primer on the Autonomic Nervous System) Shows the physical dynamic that occurs orthostatically; people with POTS are unable to properly compensate for this shift. More About Pulse...
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MERCK: Familial orthostatic tachycardia.
English: Tachycardia (Photo credit: Wikipedia) Familial orthostatic tachycardia. EXCERPT: Purpose of review: Postural tachycardia syndrome is an autonomic disorder primarily of younger women. The...
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Interview with Donna Nowak Robillard about Dysautonomia, POTS and Hemiplegic...
This is a fantastic interview with fellow POTS & Hemiplegic Migraine medical zebra, Donna Nowalk Robillard. You can listen online or download the audio here: Transpersonal Radio Podcast: Interview...
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Epic Fail
I mean to tell you, I really HATE this stupid POTS right now. I’m miffed on so many levels. Let me back up. We had made an appointment at the vet’s office for The Boo and the baby kitties. That was set...
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